One of our nurses, Katie, talks about the life-limited children in our community who are missing out on the hospice care they so desperately need.

While we support many families in the hospice, there are many who are unable to come here. Often it's because of the distance or that the sheer effort needed to move their child from home is too much.

As a Specialist Children's Outreach Nurse, Katie has been fortunate to be able to take the lead on a pilot project to take our care into the homes of our community. During the one-year pilot, the team were able to provide services such as respite, play, music therapy and end-of-life care at home to over 30 children and young people in Waltham Forest - many of whom would have been able to access our care if going to the hospice was the only option.

We know that there are many children out there needing our care, the successful pilot project has proved that. We want to be able to expand across our areas of North and North-East London, West Essex and East Hertfordshire but this will need significant further investment.

While we do receive some NHS funding, it's less than a quarter of what we need to care for the children we see at the hospice itself. Children like Grace, who was diagnosed with leukaemia last November and was referred to Haven House shortly after.

Her mum, Kelly said:

The first time I met Katie I immediately felt relaxed. She talked me through all the ways they could support us, including Hospice at Home, and we decided for the moment it would be good for Grace to get out of the house and regularly go to Haven House.

She continues:

She adores going there because they play with her and keep her occupied the whole time. Most importantly though, they also keep her safe as the slightest infection would make her seriously ill while her immune system is so low. In just a year Haven House, and Katie, have become a vital part of our family.

How your donation can help:

£35.40 could pay for two initial phone calls about the kind of care and support that the family might need.

£74.78 could pay for an initial visit where a nurse will learn about the child and meet their parents for the first time.

£141.78 could pay for three hours of play activities at Haven House, allowing a life-threatened child like Grace to have fun in a safe, supported environment.

Please donate now.