Parents, Yasmin and Hassan first noticed some changes in their daughter Aizah in August 2020 when she had difficulty with her balance and coordination. Her speech had become slurred and she had started drooling and vomiting. Within just a few days of her symptoms she was diagnosed with diffuse intrinsic pontine glioma (DIPG) – a fatal brainstem tumour. 

Please help us be there for more children like Aizah. We know that she wanted her family holding her close at home. Your donation means that our specialist nurses can provide whatever support our families need through the good times, and bad.

Aizah’s family were determined to keep her at home, surrounded by loved ones and involved in family life. Our care team were able to support her both medically and with therapeutic care. Aizah was very creative, and she loved our play sessions that involved lots of arts and crafts. She also enjoyed the yoga and physiotherapy sessions that the team were able to deliver to her at home.

Aizah was an energetic girl, who enjoyed going to school, swimming, attending her stagecoach lessons and spending time with her friends and family. She had a heart of gold, a beautiful smile and contagious laugh. She was so full of love and joy. 

Aizah’s family came together in an exceptional way, holding each other throughout this incredibly difficult time. Your support means families can rely on Haven House for end of life care so that they can be together in the comfort of their home.

In November, Aizah had developed lesions on her spine, which meant that there was a significant deterioration in her health which impacted her daily activities. She felt more pain, got sicker, and was losing mobility and functionality. At a highly distressing time, our team of nurses were there to make Aizah comfortable and to look after mum and dad right up until she passed away on January 17 this year.

Aizah fought with strength and courage. She never complained and was incredibly brave throughout. She brought so much joy to everyone around her and remained positive till the very end - inspiring so many people throughout her journey. She passed away with all her family by her side

Everybody involved with Aizah’s care developed a special bond with the family and felt incredibly responsible for ensuring she was as comfortable as she could be in our care. It was our privilege to care for her and know her, for the short time we did. We are continuing to be here for mum and dad, supporting them through the difficult months ahead.

Everybody involved with Aizah’s care developed a special bond with the family and felt incredibly responsible for ensuring she was as comfortable as she could be in our care. It was our privilege to care for her and know her, for the short time we did. We are continuing to be here for mum and dad, supporting them through the difficult months ahead.

Haven House nurse

Play at Haven House

Play is an important part of children’s development, education and learning. With your support, we provide fun and creative play and art activities both at the hospice and in family homes to help children discover the world around them. It’s so important that children can just be children and enjoy playing - despite their illnesses.

We can’t make the diagnosis go away, and we can’t provide a cure but we can bring a smile and laughter through some of the toughest times our children, young people and their families will ever face. Memories created through play are so precious to families.
Activities are tailored to meet each child’s individual needs. Our specialist play team use a wide range of fun play, from out of the box toys, to imaginative games and arts and crafts. All these things are so helpful in building a relationship with the child and their family.
Sensory play can help stimulate senses such as sight, smell, touch and sound to contribute to communication and development. Our team sometimes use messy activities with paint, jelly or foam allowing children to explore how they feel, tune into their emotions and express themselves.

Play can act as a vital coping mechanism for children and young people who are going through any kind of distress or trauma. Play or art can really help in building a child’s confidence and self-esteem through difficult times.
“Aizah’s family were determined to keep her at home, surrounded by loved ones and involved in family life. Aizah was very creative, and she loved our play sessions that involved lots of arts and crafts.” Yasmin, mum

Thank you for supporting Haven House and the specialist team who help our families create beautiful memories of being together.