News & stories News Ashley Ashley has a life-threatening condition called Rett Sydnrome. It’s a devastating neurological condition which has left her with no speech and limited mobility and co-ordination. She has epileptic fits of varying severity three or four times a week, any of which could potentially end her life. Ashley has been coming to Haven House since she was five years old, Ashley is now 15. Her mum, Tracey says “Ashley really enjoys her regular visits to Haven House. I know the patient, loving nurses are experts in looking after children like her and it’s the only place I feel comfortable to leave Ashley overnight.” To help more children and families like Ashley's please make a donation to Haven House, your help can really change lives.