Dilini Rajapakse Dilini is a medical consultant paediatrician specialising in paediatric palliative care and chronic pain medicine at Great Ormond Street hospital (GOSH). Expand Dilini has been at GOSH since 2007 and trained in paediatrics in London. In this role she has worked closely with the clinical team at Haven House children’s hospice, the local community and hospital teams supporting children, young people and their families. Dilini is experienced in delivering safe paediatric palliative care through collaborative partnerships, research and development and interdisciplinary training and education. She is committed to raising awareness about children’s palliative care and their unique experiences in life.
Stuart Rose Stuart has chaired a number of consumer businesses mostly for Private Equity investors. Expand Stuart has chaired a number of consumer businesses mostly for Private Equity investors. Current chairmanships are Cass Art and RMS International.
Retail volunteers Volunteering in one of our shops (Chingford, North Chingford, Loughton, Epping, Leytonstone, Crouch End and Romford) can be rewarding and a very interesting fun way of volunteering. Expand Shop volunteers help with all aspects of the day today running of the shop so you could be asked to help out with any of the following activities; Serving customers at the till point Sorting through donations Cleaning bric-a-brac Pricing and hanging clothes Helping with shop displays. Haven House relies on having a team of volunteers to help the Manager run the shop on a regular basis. Most shop volunteers come in for one or two sessions each week to fit around their other responsibilities. To find out more please contact: Volunteering020 8498 5853
Volunteer gardeners Are you an outdoors person who enjoys working in beautiful surroundings? Expand We are looking for volunteer gardeners to help us look after our beautiful grounds, which include tranquil woodland and mature shrub borders. Enthusiasm is the key ingredient, you do not have to be a very knowledgeable gardener as training and support are provided. Tasks you will undertake include the following: Preparing the flowerbeds and borders Planting new bulbs, shrubs and flowers Cutting back, weeding, clearing and general tidying throughout grounds Cutting and edging lawns Maintaining the sensory garden. To discuss this volunteering opportunity please contact: Volunteering020 8498 5853
Rochelle Humes Ambassador Expand Rochelle Humes - a self-proclaimed 'professional multitasker' – is just that. Enjoying continued success with The Saturdays, Rochelle also regularly fronts ITV’s ‘This Morning’ and curates her very own Very clothing range whilst being full-time Mum to Alaia-Mai.
Ghislaine Stephenson Ghislaine has worked within the NHS as a registered adult and child nurse for her whole career spanning over 30 years. Expand Ghislaine remains passionate about caring for patients and their families and ensuring the delivery of high quality safe care. She has held senior nurse leadership posts in hospitals in North London since 2004. Ghislaine currently works as the Associate Director of Nursing for Children and Young People at Whipps Cross. She works professionally with the Team at Haven House for children and their families with life-limiting and life threatening conditions and values the care they deliver. She hopes her professional experience will be of value to the Trustees.
Vicki Michelle MBE Patron Expand Vicki Michelle MBE is best known as the iconic Yvette in nine seasons of the BBC series 'Allo 'Allo. Vicki has had an extensive acting career in TV, films and the theatre and is a star of the pantomime circuit. She is President of the Lady Taverners - Essex Branch and is an active and committed charity worker. Vicki first became a patron of Haven House when her young nephew was a visitor to the Hospice.
Ben Shephard Patron Expand Ben Shephard is engaging and warm and renowned for his ability to bring out the best in people and this, combined with his dynamic and energetic style, makes him one of the most popular presenters in the UK.Ben presents ITV1's Good Morning Britain and is host anchor for Sky Sports Champions League, Goals on Sunday and League Cup coverage. Amongst his achievements Ben hosted GMTV for ten years and was also part of the X Factor team hosting three seasons. Ben now presents Good Morning Britain and Ninja Warrior UK.Passionate about people, Ben is a patron of several charities including Haven House and regularly supports the hospice with his presenting skills and attending events.
Ray Winstone Patron Expand Ray Winstone is one of Britain's most prolific, charismatic and acclaimed international actors. His career, which spans three decades, has seen him tackle such diverse and complex roles from King Henry VIII to gangster bosses and from Beowulf to The Chronicles of Narnia. He has won two international Emmy Awards, a Screen Actors Guild Award, three British Independent Film Awards and has been nominated for two BAFTAs.
Mark Wright Ambassador Expand Mark Wright burst on to our TV screens in October 2010 and has gone on to become one of the most popular, and talked about media personalities in the UK. He has a successful TV presenting career, his own Heart FM radio show, an incredible two million followers on Twitter and is the face of Littlewoods.com.In 2014 Mark made it to the finals of Strictly Come Dancing and hosted our annual Haven House ball in 2015.
Specialist skills Maybe you have a skill/professional background that is relevant to the work we do. Expand Even if the role is not listed please do get in touch with us and we will see if there is a volunteering role suitable for you. Examples of this have been complementary therapists, music therapists and researchers. To find out more please contact: Volunteering020 8498 5853
Your rights Expand You retain control of how we use your data and you have the right to ask us to stop processing your personal information, which we will do. At any time, you have the right to make a Subject Access Request which entitles you to your own personal data. In some circumstances, we may legally be required to retain your personal information for legal or audit purposes. However, this will be discussed with you depending on your requirements. Any requests for patient information will be processed in accordance with: Caldicott Guardianship Policy Child Protection and Safeguarding Policy Records Management and Record Keeping Policy You have the right to: Request a copy of the information we hold about you Update or amend the information we hold about you if it is wrong Change your communication preferences at any time Ask us to remove your personal information from our records: in these circumstances we would retain your name, home address and email address on a ‘suppression list’ of individuals with whom we will not make any future contact Object to the processing of your information for marketing purposes, or Raise a concern or complaint about the way in which your information is being used. If you wish to find out more about these rights, or to obtain a copy of the information we hold about you, please contact us at: Subject Access RequestData ControllerHaven House Children’s HospiceThe White HouseHigh RoadWoodford GreenEssex IG8 9LBTelephone: 0208 505 9944Email: [email protected]
Policy changes Expand We may update this policy at any time, so please do check it from time to time. We will notify you about significant changes in the way we treat personal information by sending a notice to the primary email address you have provided to us, or by placing a prominent notice on our website. By continuing to use our website you will be deemed to have accepted such changes. Every four years we review our approach to consent and the balancing of legitimate interest with the rights and interests of the individual. If the balancing exercise indicates a different approach would be appropriate we change our approach accordingly. We will also review this policy if there is a change in the law that requires us to do so.
Cookies Expand A cookie is a small file of letters and numbers that we may put on your computer or mobile device when you access our website. Cookies allow us to distinguish you from other users of the website, helping us to provide you with a good experience when you browse our website and also allowing us to improve our site. For example, they will tell us whether you have visited our site before or whether you are a new visitor. Another example is enabling us to show you articles that you have recently read, so that you can access them again more easily. Haven House uses cookies to help track the success of our online advertising and monitor the usage of our website. We use Google Analytics for our web analytics and work with an agency called Clear Ads to monitor our online advertising results. With cookies, the information we collect and share is anonymous and does not personally identify you. It does not contain your name, address, telephone number, or email address. Cookies can be set by the website you are visiting (first-party cookies) or by other websites (third-party cookies) whose content we are hosting, e.g. YouTube. Most web browsers allow at least a degree of control over cookies through their settings. You can opt to receive an alert whenever a cookie is set or to disallow the setting of cookies altogether. You can also delete all existing cookies. You can prevent the setting of cookies by adjusting the settings on your browser (see your browser Help for how to do this). Be aware that disabling cookies will affect the functionality of Haven House’s website and many other websites that you visit. For information about how to manage or delete cookies for your particular browser, please refer to the browser’s help section. Alternatively, you can visit www.aboutcookies.org, which has comprehensive information on how to manage cookies on a wide variety of desktop browsers.
Our website and social media Expand By using our website, social media pages, entering a competition or providing your information you consent to our collection and use of the information you provide in the ways set out in this policy. If you do not agree to this policy please do not use our website, social media pages or services. For all areas of our website which collect personal information, we use a secure server. Although we cannot 100% guarantee the security of any information you transmit to us, we enforce strict procedures and security features to protect your information and prevent unauthorised access. We use Raising IT to help us with our web design, and to help us gather data submitted by our website users. Our domain is hosted by Fastnet. Our website contains links to other websites belonging to third parties and we sometimes choose to participate in social networking sites including, but not limited to, YouTube and Facebook. We may also include content from sites such as these on our website. However, we do not control the privacy practices of these other sites. You should make sure when you leave our site that you have read and understood that site’s privacy policy in addition to our own. Our websites use cookies to help them work well and to track information about how people are using them. More information on cookies can be found in the section below.
The accuracy of your information Expand Our aim is for all information that we hold about you to be accurate and, where necessary, kept up-to-date. If any of the information we hold about you is inaccurate and either you advise us of this or we become aware in another way of its inaccuracy, we will ensure it is updated as soon as possible. To update any of your details please contact us by emailing our Supporter Care team or by calling 020 8506 3436 (Monday-Friday, 9am-5pm). You can also update your details anytime via our online Keeping in touch form.
Storing your information Expand Information is stored by us on computers located in the UK. We may transfer the information to other offices and to other reputable third party organisations as explained above. We may also store information in paper files.For financial and technical reasons we may, on occasion, need to use the services of a supplier outside the European Economic Area (EEA). If this were to occur we would ensure that your information is held in compliance with the Data Protection Act and the General Data Protection Regulations. By submitting your personal information you agree to this transfer, storing or processing at a location outside the EEA. We will take all reasonable steps to ensure that your data us kept secure and in accordance with this privacy policy.We will keep your information for as long as we need to, in order to deliver our services. We will take into consideration our legal obligations and tax and accounting rules when determining how long we should retain your information. We place great importance on the security of all personal data and information associated with our supporters, customers and beneficiaries. We have security measures in place to protect against the loss, misuse and alteration of personal data under our control. For example, only authorised personnel are permitted to access user information and we use secure server software (SSL) to encrypt financial and personal information you input before it is sent to us.While we cannot ensure or guarantee that loss, misuse or alteration of data will not occur while it is under our control, we use our best efforts to try to prevent this. We will keep your information only for as long as we need it to provide you with the goods, services or information you have requested, to administer your relationship with us, or the preferences of our supporters, to comply with the law, or to ensure we do not communicate with you if you have asked us not to do so. When we no longer need information we will always dispose of it securely.
Sharing your information Expand We will only share your information if: We are legally required to do so, e.g. by a law enforcement agency legitimately exercising a power or if compelled by a Court order. We believe it is necessary to protect or defend our rights, property or the personal safety of our staff and volunteers, or visitors to our premises or websites. We are working with a carefully-selected partner that is carrying out work on our behalf. These partners may include our lottery agency, marketing agencies, IT specialists and research firms. The kind of work we may ask them to do includes processing, packaging, mailing and delivering purchases, answering questions about products or services, sending postal mail, emails and text messages, carrying out research or analysis, and processing card payments. We only choose partners we can trust. We will only pass personal data to them if they have signed a contract that requires them to: Abide by the requirements of the General Data Protection Regulations Treat your information as carefully as we would Only use the information for the purposes it was supplied (and not for their own purposes or the purposes of any other organisation) Allow us to carry out checks to ensure they are doing all these things Many of our supporters who participate in events to raise funds for Haven House set up a personal page on a specialist website (JustGiving or Virgin Money Giving) designed to help individuals and charities raise money and maximise the use of Gift Aid. Personal data provided by Haven House supporters for this purpose to JustGiving and Virgin Money Giving is passed to Haven House. We store this information in our database and use it to communicate with our supporters about their fundraising activities. Some of our fundraising activities are set up for young children to participate in with their parent or guardian. Parents or guardians entering their children in one of these events will be asked on the relevant fundraising page (Haven House website, JustGiving or Virgin Money Giving), or on their sponsorship form, if they wish to share the child’s first name with us. If the parent or guardian gives us the child’s name, we will not add it to our database and we will never make contact with the child. We will tell parents why we are asking for the child’s name and they will have the option not to share that information with us.
Privacy for those we provide care and support to Expand Why we collect information about youWe receive information about your child from your child, you, your family and from other people involved their care (e.g. GP, health and social care professionals). We use this information to keep records about their care. These records are stored electronically or on paper and may include: Personal details like their name, address, date of birth, parent/guardian, legal representative Contacts we have with you like appointments and telephone calls Notes and reports about their health, treatment and care Relevant information from people who care for them or know them well Things we are told about wishes and preferences How records may be shared with other professionalsMembers of the Haven House Care team looking after your child may share relevant information from their records with each other. This team may include doctors, nurses, therapists, pharmacists, administration staff and people providing emotional and practical family support. It may also include students or trainees in medicine or health and social care who are working with our team. Often it is necessary to share relevant information from your child’s records with health or social care professionals in other services who are directly involved in their care. Such professionals may include GPs or district nurses, hospital teams, ambulance staff or social care services. In these circumstances, we only share relevant information from their records for medical purposes with your consent and if these people have a genuine need for it, or if we are under a legal obligation to do so. If you give us any specific instructions not to share their records in this way, we will respect this to the extent we are not prohibited from doing so by any legal obligation, although this may affect your child’s care. If it will affect care, we will let you know. Other reasons for sharing recordsYour child's records help us to review the care we provide and to make sure that it is of the highest possible standard. This includes routine audits of our care or investigating and responding to complaints, incidents or near misses. Our regulatory body, the Care Quality Commission (CQC), or NHS organisations who commission services from us, may also ask to view relevant information from these records and/or seek feedback from you about the service we provide. We may also share information with local organisations, or commissioners, to gain Commissioned care funding. If you don't want us to share relevant information from your child's records with these organisations or you don't want to provide feedback, they will respect your wishes where it is possible to carry out their checks without looking at relevant information from records and/or contacting you for feedback. Some relevant information in your child's records may also be shared with other professionals or other organisations. This might be to help teach health or social care professionals, to provide statistical information to national organisations with interests in health care or health care research. When relevant information from your child's records are shared in this way, we remove or disguise any personal or identifiable information about you wherever possible. Your wishes will be respected, and if you do not want us to share your child's records in this way it will not affect their care. Occasionally, we are required by law to share records and may therefore be prevented from respecting your wishes not to share these records. This includes when: Our regulator, the CQC, is carrying out an audit We find an infectious disease (like meningitis or measles) which may put others in danger A formal court order has been made Other organisations like the police or social services need it to prevent serious crime or where there is a child or adult at risk of abuse or neglect. How you can help usYou can help us by giving us the right details about yourself and your child, and by letting us know if you have any particular wishes about sharing your records. You can also help by letting us know when any of these details change. How we keep your records safeWe take our obligations to keep your child’s records safe very seriously. Everyone working for us, or who has received their records from us, has a legal duty to keep records confidential. They are monitored by the Caldicott Guardian, a senior clinician responsible for ensuring that people’s rights to privacy and confidentiality are respected. Haven House Children’s Hospice Caldicott GuardianEileen White – Director of CareHaven House Children’s HospiceThe White HouseHigh RoadWoodford GreenEssex IG8 9LBTelephone: 0208 505 9944Email: [email protected]
Vulnerable supporters Expand We recognise the importance of protecting our vulnerable supporters and follow the Code of Fundraising Practice in the UK issued by the Fundraising Regulator on treating donors fairly. We believe this helps to support our staff and professional fundraisers who come into contact with supporters to provide high quality customer care, ensuring anyone donating to the Charity is in a position to make a free and informed decision. If an individual appears vulnerable we will offer them a cooling-off period, or more time before taking a donation. If we believe the individual lacks the mental capacity to make a decision we do not take a donation.
In memoriam Expand Sometimes people choose to donate to Haven House in memory of a child or another loved one who has died. They may do this, for example: By setting up an ‘In Memoriam’ or ‘Tribute Fund’ page via HH website or JustGiving, or By writing to Haven House directly enclosing a cheque for funds donated at a funeral. We capture and process the information provided to us for this purpose to make sure we are sensitive and respectful in our communications with these supporters, for example empathising with their loss; thanking them for choosing to support Haven House; and letting them know who they can contact in Haven House for support and advice.