Here at Haven House Children's Hospice, we understand that outbreaks such as COVID-19 are worrisome for families caring for children with serious and complex health needs. We are sharing information for parents and carers that might help.

In light of the rapidly changing situation of the Coronavirus, we have had to prioritise our model of care to support our NHS and families on our caseload in this time of crisis.  We will be prioritising our care as follows:

  • End of Life referrals
  • Step down referrals for children well enough to leave hospital
  • Crisis respite support in the hospice and at home
  • Practical support at home for those in isolation
  • Remote Therapeutic support such as music, play, yoga and counselling

Given the government's latest advice on shielding and protection of vulnerable groups we are restricting planned respite support unless absolutely necessary. 

Please do not visit the hospice unless you have authorisation from our senior care team.

If you are visiting Haven House, please note:

  • If you have had a high temperature or a continuous cough in the last 7 days, please do not come to the hospice
  • If you have been in contact with anyone with a suspected or confirmed case of Coronavirus, please speak to one of the senior nurses

Please refer to the Government guidelines for up to date advice and read the guidelines and follow the rules for social distancing.

What is Coronavirus? Coronavirus is a new type of illness which spreads easily from person to person.

You can access current UK Government Guidelines and advice here.

How do I avoid catching and spreading the virus?

Currently the best thing you can do is to follow the NHS guidelines and Government guidelines. This includes washing your hands with soap and water regularly for up to 20 seconds, using hand sanitiser gel and catching coughs and sneezes in a tissue or sleeve.

Managing staff and carers

Make sure you agree a plan with any carers or staff who enter your home and ensure they are strictly following the NHS guidelines. This includes family and friends who may visit. Put reminder notices around the home if that helps. 

If carers are employed through an agency, you could contact the agency to confirm their policy if you are worried.

Don’t forget to discuss a plan for what happens if you’re left without care. Involve your care agency and find out what they have in place. Your local authority should be able to tell you if they have any contingency plans. Do you have family members or friends who could help?

Treatment plans and hospital appointments

It is important to continue to follow your agreed treatment plans as much as possible and unless specifically told otherwise, attend agreed appointments and procedures at your GP surgery, or hospital.

Medicines

Whilst there is no need to stock-pile large quantities of medicines, it is important as ever to ensure you have adequate supplies of medicines and other consumables.

Holidays and travel

There is useful advice for those planning holidays and travel from the NHS website and from the Foreign and Commonwealth Office. It also includes guidance for those returning from abroad.

Who to contact if worried about coronavirus exposure

If you think you’ve been in contact with someone with coronavirus, or if you have any non-emergency concerns about your health, that of your child, or those in your household (including family members, staff and carers). Tell them that you are a carer and explain your situation. For emergency situations, call 999 immediately.

Where else to go for information and advice

There are a range of useful sources of information and advice available for those in England, Wales, Scotland and Northern Ireland.

UK Government Guidelines
NHS Guidelines

If you are concerned and would like to speak to a a Haven House member of clinical staff please contact Aisling Kilbane, Interim Clinical Nurse Manager.

Talking to a child worried about Coronavirus

If you would like some advice about talking to your children about Coronavirus then please follow this link from the NSPCC.