Our parents tell us that respite care at Haven House has saved their life. While their child stays with us, parents are able to take a break from caring 24 hours a day.

Contrary to what you may think, the majority of our school-aged children go to school most days. Therefore, the summer holidays are often incredibly difficult for parents having to care for their sick child as well as potentially juggling domestic duties, other siblings and work.

Understandably, our day and overnight respite service becomes very popular during the school holidays. Haven House is usually the only place where parents are able to leave their child knowing that they will be cared for by nurses while having fun. Without Haven House there would often be no respite available to them. Here’s what some of our parents say about our valuable service:

Looking after Joe is a 24/7 job and it is exhausting. Haven House is part of our family and offers us a true respite when Joe stays there. We are able to be a ‘normal’ family and go walking with our two younger sons and just be spontaneous.

I know Kristian enjoys himself when he is at Haven House and it gives me the chance to see friends and family or sometimes just switch off and have a good night’s sleep.

Without Haven House I’m not sure we would have made it this far. The nurses made me realise that I didn’t have to do this on my own any more. They really were the only support I had and they quickly became an extension to my family.

I couldn't imagine life without Haven House now. I know Georgia loves the time she spends there and is benefitting from music therapy and physiotherapy. It also gives me that break to enable me to carry on giving her the best life possible, however long that may be for.

Haven House has been our second home for the last ten years. The staff are like an extension of our family and without the care and support they have given us I honestly don’t know how we would have coped. When Ashley stays at the hospice we are able to spend some quality time with our sons, James and Lewis. We often go out for a meal or to the cinema.

Ruby-Mo looks happy when she is at Haven House and I know the nurses are brilliant so I have peace of mind. I was able to go away for my 30th birthday for five days and totally relax. It really was the best birthday present; having some me time safe in the knowledge that Ruby-Mo was in expert hands.

I feel completely at ease leaving Leah at the hospice and it enables me to get a good night’s sleep away from the routine of medicines and exercises.

 

Read our family stories here.