Rosie, the first baby of Mum Yuen and Dad Kevin was born seemingly healthy in March 2013.

As her early days passed Rosie became extremely poorly. She suffered from severe epileptic seizures, an unrelenting side-effect of an undiagnosed neurological condition.

She spent her first months undergoing a multitude of tests while doctors tried to understand her condition.

Unfortunately, just six months after she was born doctors gave Yuen and Kevin the devastating news that there was nothing more they could do for baby Rosie. Her family and Great Ormond Street Hospital decided to move her to Haven House so she could receive the best possible care during the last few days of her life.

Mum and Dad and Rosie’s grandparents stayed in our family flat onsite and family and friends could visit at any time. Yuen and Kevin were given access to a counsellor and Haven House arranged for Rosie to receive her last rites.

Tragically, three days after Rosie arrived at Haven House she passed away, her mum and dad by her side. Rosie stayed in our Butterfly Suite (a specially equipped climate controlled room), allowing her parents and family precious time to say goodbye prior to her funeral.

In July 2014, Yuen gave birth to a healthy daughter who they named Ruby. While Rosie will never be forgotten, having another child to focus on has helped Yuen and Kevin to move on.