Parent information Welcome to our parent page. We have updated this page to reflect changes during this current Covid 19 crisis. We are delivering music, yoga, play and counselling to families via video and telephone for the coming weeks. We are providing emergency respite care for families, providing step down care to free up beds in local hospitals and helping families who may be struggling or are in crisis. Our play team have created Sensory Toy Bags and we are trying our best to deliver these to you. If you are shielding/self-isolating and need help with collection of medication… please contact us. For information on all resources below - please email the Community and Wellbeing Team or call 020 3096 5815 Current changes to normal services are highlighted in purple below. Please scroll down for Coronavirus information. Welcome to our parent page. Here you will find information about: 1. Support for Parents 2. Support for Young Adults, Siblings and Young Children 3. Support for the whole family4. Useful Information The following events and activities are available to all families who are supported by the hospice. Family Support 1. Support for Parents Coffee Morning - 10am–12pm on the second Thursday of every month.Come along and chat to other parents. An informal group and all parents are very welcome. Please contact the Community and Wellbeing team or call 020 3096 5815 for more information. Our coffee mornings have been cancelled for the foreseeable future, but we are holding video coffee mornings on the 2nd Thursday of the month. Law Clinic - A partnership between LawWorks and Together for Short Lives.Would you like to meet with volunteer lawyers who can help you with care packages, housing issues, personal budgets and more. If you would like more information please contact the Community and Wellbeing team or call 020 3096 5815. During this time of crisis, LawWorks are offering advice on employment issues and furloughing, community care, housing and welfare benefits. Dads' Group Join us at our Dads' Group where you will be able to share some of your own experiences and challenges as well as have fun. Our dads have recently raised money for Haven House by doing The Thames Walk, well done to our Dads. Video sessions are taking place every second Sunday at 11.30. These sessions are providing extremely useful information for families during this current climate. If you are interested in more information, please contact the Community and Wellbeing team or call 020 3096 5815. Complementary TherapiesOur complementary therapy service is led by volunteers and is offered to parents of children who are receiving care at Haven House. Have a look at what we offer. For more information or to book a session please contact our Holistic Care Centre or telephone 020 8505 9944. These therapies have been put on hold during the Coronavirus crisis 2. Support for Young Adults, Siblings & Young Children Transitional Care Get support for young people to develop in life as they move from a children’s hospice to adult services. We can help to build bridges between children and adult services. Michelle Higgins, Specialist Outreach Nurse is our Transitional Care Lead so if you have any queries please contact us or call 020 3096 5815. Young Adult Support Group4 - 7pm on the third Wednesday of every month at St Francis HospiceFor young adults age 16 or over with life-limiting illnesses. Haven House is working in partnership with Saint Francis Hospice and The J’s Hospice to bring young adults together. Enjoy a take-away and take part in Scalextrics, Xbox, Arts & Crafts and complementary therapies. Parents and carers can either stay or leave their children. During the sessions staff are on hand to ensure everyone receives the support they need. For more information please contact our Community and Wellbeing Team or call 020 3096 5815. Teenage Cancer Group 5.30 - 8pm on the third Thursday of every month.The group provides a chance to get together with other teens living with a cancer diagnosis and offers support for those young people and their families. There’s food, fun, games as well as music so if you’d like to join in please contact our Community and Wellbeing Team or telephone 020 3096 5815. This group is being held by video sessions. Buddies (siblings age 5 and over) Brothers and sisters of children who access hospice services have an opportunity to get together; have fun and express their feelings. For more information please contact a member of the Community and Wellbeing Team or telephone them on 020 3096 5815. Some of our volunteers are ex teachers and have offered online help for children. If you would like more information – please call the above number. Sibling Support We are able to offer one to one support for siblings, aged five and above, who might need help in dealing with difficult emotions and feelings. If you would like to find out more about this service please contact our Holistic Care Centre or telephone 020 3096 5815. Music We are currently offering various video link music sessions – please call the number below for more information. Saturday Music Therapy GroupFamily Group Music Therapy takes place monthly on the third Saturday of every month between 11am-12 noon and open to all ages. Places are limited so please book in advance. Contact the Community and Wellbeing Team or telephone 020 3096 5815. Wriggles and Rhymes 10.30-11.30am on Monday morningsMusic therapy group for children pre-school age plus parent/carers followed by Stay and Play 11:30am–12:00pm. Please book in advance. Please contact the Community and Wellbeing team or telephone 020 3096 5815. Yoga Family group Yoga takes place monthly and sessions for under 5s start at 11am with over 5s session starting at 12 noon. Places are limited so please book in advance. Please contact Lisa Jones or telephone 020 8505 9944. Weekly Group Yoga takes place on Friday afternoons with sessions starting at 4pm and 5pm respectively. If you would like to book a place on a course. Please contact our Holistic Care Centre or telephone 020 8505 9944. The Friday and Saturday group sessions are not taking place at the moment. However, we are currently offering video link yoga sessions – please call 020 3096 5815 for more information. 3. Support for the Whole Family CounsellingWe offer a Counselling service to parents, carers and extended families. Counselling helps you deal with issues that are causing emotional pain or making you feel uncomfortable. Our counsellor provides a safe space for you to talk and explore difficult feelings. This can either be on a one to one basis or if preferred as a couple. For further details please contact our Community and Wellbeing team or telephone 020 3096 5815. Counselling is continuing via video call – please call the above number if you would like to speak to someone. Family Support WorkerOur family support worker offers support including advice and information on social issues, liaising with professionals from other agencies, completing grant applications and support with benefits. Information for parents of Waltham Forest children - we are aware that the Home to School Transport arrangements have recently changed in Waltham Forest. You are entitled to ask for a review of the decision if you are not happy with it. Please contact our Community and Wellbeing team or telephone 020 3096 5815. You can also get help and information from The Waltham Forest Parent’s Forum. All our teams are currently working together to get information out to families and sharing this information, so we can continue to help you in the best way we possibly can. 4. Useful Information during the current Covid crisis Click on this link to take a look at the Corina advice information that we have put together for you. If you would like some advice about talking to your children about Coronavirus then please follow this link from the NSPCC. Explaining Coronavirus Childhood Wellbeing and Coronavirus from Sheffield Children's NHS gives accessible information to make it easier to explain about Coronavirus to children Click here for information about BAME Black Asian and Minority Ethnic communities. This platform brings service providers together to centre their voices, and aims to act as a resource for BAME communities, who are disproportionately affected by the Covid crisis. Email [email protected] At a Loss provides a signposting website for bereaved families. Email: [email protected] The Good Grief Trust offers advice if you have been affected by a bereavement during this crisis and need support and guidance. National covid19 free helpline 0800 2600 400, 8am - 8pm Together for Short Lives Family Support Hub Scottish Partnership for Palliative Care gives clear guidance on COVID-19 https://www.palliativecarescotland.org.uk/content/covid-scottish-eolc-guidance/ Winton’s Wish have a resource on COVID-19 for young people with learning difficulties. https://www.winstonswish.org/coronavirus/ Wipe away those Tears http://www.wipeawaythosetears.org/ Thames Water Thames Water Communication: supporting customers and communities in light of Covid 19: “These are difficult times for all of us, and now it’s even more important we do what we can to support the most vulnerable. We would like to inform people in your communities about our free priority services register. We invite our customers to share their individual needs with us, so we can tailor our communications with them, improve their resilience and prioritise how we help them if their water stops. You can find out more about our service on our website. Of course, we work hard to try and ensure water never stops flowing but from time to time, things can go wrong. In these events, we try to deliver bottled water to people with water-dependent medical conditions (i.e. at-home dialysis) and to those with mobility issues, first of all. We understand a huge number of people are self-isolating because of the coronavirus at the moment, and although we’d love to be able to deliver water to every home, it’s sadly not possible. We recommend that anyone at-risk and/or self-isolating who needs water supplying to them reaches out to friends, family members or neighbours to help. If they have a pre-existing health condition or mobility issue, or nobody can deliver water along with their groceries, they should join our register and we’ll always try to help. If you would like more details on the priority services and how we can support your communities’ resilience please email [email protected] Thames Water offer extra support to medically vulnerable customers. Check eligibility and register: http://bit.ly/PSRform Supportive OrganisationsFor further support, guidance and advice please take a look at these not-for-profit and charitable organisations who can provide support to parents of children with life-limiting conditions. For any other information please telephone 020 8506 5525. Tryb4uFly Tryb4uFly is an organisation offering advice and equipment rental for air travel with a disability. You can hire supportive seating and harnesses. They have a useful information leaflet with tips for travel. You can book an OT assessment in their mock-up airplane cabin in Carshalton. Please contact The Queen Elizabeth Foundation on 020 8770 1151 for more information. Planning a visit to a local attraction or further afield? Worried that you won’t be able to find a place to change your child?Visit the link to search for all Changing Place toilets in the UK.http://www.uktoiletmap.org/ Family Forum Family Forum Meet with Haven House Trustees David and Inge to share feedback about your experiences and to help shape service delivery. You can also write to us at Family Forum, Haven House Children's Hospice, The White House, High Road, Woodford Green, Essex IG8 9LB, or alternatively please complete this feedback form here. React Children's Charity React Children’s charity provides assistance to financially disadvantaged families who care for a child with a life-shortening illness. For further enquiries call 020 8940 2575. Information is available at www.reactcharity.org, where application forms can be downloaded or see the attached application and information form. Mobility Motability have launched a scheme to provide specialist vehicles to children in the UK under the age of three. The route to apply is through the Family Fund grant scheme. Haven House Children’s Hospice gives the highest priority to safeguarding the children and young people who use our services or visit our premises. If you have any safeguarding concerns please contact our designated Safeguarding Lead Adila Ahmed on 020 3096 5816 or Aisling Kilbane on 0208 498 5857For any other information please telephone 020 8505 9944 or email on our secure email [email protected].