Welcome to our parent page. Here you will find information about:

• Family Support
• Sibling Groups
• Music Therapy
• Counselling
• Physiotherapy
• Yoga
• And much more

The following events and activities are available to all families who are supported by the hospice.

Family Support

1. Support for Parents

Coffee Morning - 10am–12pm on the second Thursday of every month.
Come along and chat to other parents. An informal group and all parents are very welcome. Please contact the Family and Community Support team for more information.

Law Clinic - A partnership between LawWorks and Together for Short Lives.
Would you like to meet with volunteer lawyers who can help you with care packages, housing issues, personal budgets and transition. If you would like to arrange an appointment please contact the Family and Community Support team.

Dad's Group
Join our Dad's Group and share your experiences and challenges as well as have fun. The next dates are planned for Sunday 7 October, 4 November and 9 December. If you are interested in joining our group please contact the Family and Community Support team if you are interested in attending.

Complementary Therapies
We offer Reflexology, Rejuvanesence and Reiki performed by experienced complementary therapists. These treatments are available weekly and are free of charge to parents. For more information or to book a session please contact our Holistic Care Centre or telephone 020 8505 9944.

2. Support for Young Adults, Siblings & Young Children

Transitional Care
Get support for young people to develop in life as they move from a children’s hospice to adult services. We can help to build bridges between children and adult services. Mel Scott, Senior Staff nurse is our Transitional care lead so if you have any queries please contact us.

Young Adult Support Group
4 - 7pm on the third Wednesday of every month at St Francis Hospice
For young adults age 16 or over with life-limiting illnesses. Haven House is working in partnership with Saint Francis Hospice and The J’s Hospice to bring young adults together. Enjoy a take-away and take part in Scalextrics, Xbox, Arts & Crafts and complementary therapies. Parents and carers can either stay or leave their children. During the sessions staff are on hand to ensure everyone receives the support they need. For more information please contact Mel Scott.

Teenage Cancer Group
5.30 - 8pm on the third Thursday of every month.
The group provides a chance to get together with other teens living with a cancer diagnosis and offers support for those young people and their families. There’s food, fun, games as well as music so if you’d like to join in please contact Katie Lewis or telephone 020 8506 5521.

Buddies (siblings age 5 and over)
Brothers and sisters of children who access hospice services have an opportunity to get together; have fun and express their feelings. For more information please contact a member of the Family and Community Support team or telephone them on 020 8506 5523.

Sibling Support
We are able to offer one to one support for siblings, aged five and above, who might need help in dealing with difficult emotions and feelings. If you would like to find out more about this service please contact our Holistic Care Centre or telephone 020 8505 9944.

Music Therapy
Family Group Music Therapy takes place monthly on a Saturday between 11am-12 noon and open to all ages.
Places are limited so please book in advance. Contact Helen Mottram or telephone 020 8506 3765.

Wriggles and Rhymes
10.30-11.30am on Monday mornings
Music therapy group for children aged 0 - 2 year plus parent/carers followed by Stay and Play 11:30am–12:30pm. Please book in advance. Please contact Helen Mottram or telephone 020 8506 3765.

Yoga
Family group Yoga takes place monthly and sessions for under 5s start at 11am with over 5s session starting at 12 noon. Places are limited so please book in advance. Please contact Lisa Jones or telephone 020 8505 9944.
Weekly Group Yoga takes place on Friday afternoons with sessions starting at 4pm and 5pm respectively. If you would like to book a place on a course. Please contact our Holistic Care Centre or telephone 020 8505 9944.

3. Support for the Whole Family

Counselling
We offer a Counselling service to parents, carers and extended families. Counselling helps you deal with issues that are causing emotional pain or making you feel uncomfortable. Our counsellor provides a safe space for you to talk and explore difficult feelings. This can either be on a one to one basis or if preferred as a couple. For further details please contact Bev Shearer or telephone 020 8505 9944.

Family Support Worker
Our family support worker offers support including advice and information on social issues, liaising with professionals from other agencies, completing grant applications and support with benefits. 

Information for parents of Waltham Forest children - we are aware that the Home to School Transport arrangements have recently changed in Waltham Forest. You are entitled to ask for a review of the decision if you are not happy with it. Please contact, Becki Josiah, our Family Support Worker who is available to help you with this if you need it or telephone 07921 453 247. You can also get help and information from The Waltham Forest Parent’s Forum.

4. Other Information

Parent Forum
Meet with Haven House Trustees David and Inge to share feedback about your experiences and to help shape service delivery. If you would like to attend, please contact Family Support or telephone 020 8506 5523.
You can also write to us at Parent Forum, Haven House Children's Hospice, The White House, High Road, Woodford Green, Essex IG8 9LB, or alternatively please complete this feedback form here.

Free photo-shoot
The Butterfly Wishes Network provide free photo-shoots for parents of life limited children. They'd like to work with Haven House families so let Becki Josiah know or register your interest here.

Family offers
For further support, guidance and advice please take a look at these not-for-profit and charitable organisations who can provide support to parents of children with life-limiting conditions. For any other information please telephone 020 8506 5525.

Tryb4uFly
Tryb4uFly is an organisation offering advice and equipment rental for air travel with a disability. You can hire supportive seating and harnesses. They have a useful information leaflet with tips for travel. You can book an OT assessment in their mock-up airplane cabin in Carshalton. Please contact The Queen Elizabeth Foundation on 020 8770 1151 for more information.

Ideas from your child
We are working with Children's Hospices Across London to recruit more nurses to Haven House and are keen to get ideas from young people. We're interested in hearing from young people who access our services.
Please take a look at the this document (330kb) with your child and encourage them to take part. For more information contact Katie Stevens. Thank you.

News
We teamed up with the Paediatric Oncology team at Whipps Cross hospital to host a garden party for children with cancer and their families recently. Lots of fun activities were available along with advice and support from professionals. Read more here.


Haven House Children’s Hospice gives the highest priority to safeguarding the children and young people who use our services or visit our premises. If you have any safeguarding concerns our Designated Safeguarding Leads can be contacted directly on 020 8506 5524 or Debbie Dawes.

For any other information please telephone 020 8505 9944.