Parent information Welcome to our parent page. Here you will find information about Haven House family events and services including parent and sibling groups, music therapy, counselling, physiotherapy and yoga. Our hospice provides a wide range of support and this section gives you more detailed information on each of them. There are various links and contact names as well as telephone numbers if you’d like to talk to a member of the team. Please do get in touch if there is other information that might be useful to you. We hope we can give you a better understanding of how the hospice could benefit your family through practical or emotional support. The following events and activities are available to all families who are supported by the hospice. Family Support Young Adults & Siblings Transitional Care We are here to support young people to develop in life as they move from a children’s hospice to adult services. We will support you to overcome the barriers to good transition by building bridges between children and adult services. Mel Scott, Senior Staff nurse, is our Transitional care lead so if you have any queries please do get in contact. Young Adult Support group at St Francis Hospice 4 - 7pm on the third Wednesday of every monthFor young adults age 16 or over with life-limiting illnesses. Haven House is working in partnership with Saint Francis Hospice and The J’s Hospice to bring young adults together at Saint Francis Hospice in Havering-atte-Bower. Come along and enjoy a take-away of your choice and take part in various activities: Scalextrics, Xbox, arts and crafts and complementary therapies. Parents and carers can also choose to stay or take a few hours out for themselves, safe in the knowledge their loved ones are well cared for. During the sessions staff are on hand to ensure everyone receives the support they need. For more information please contact Mel Scott. Teenage Cancer Group 5.30 - 8pm on the third Thursday of every month.The group provides a chance to get together with other teens living with a cancer diagnosis and offers support for those young people and their families. There’s food, fun, games as well as music so if you’d like to join in please contact Katie Lewis or telephone 020 8506 5521. Buddies (siblings age 5 and over) Brothers and sisters of children who access hospice services have an opportunity to get together, have fun and express their feelings. For more information please contact a member of the Family and Community Support team or telephone them on 020 8506 5523. Sibling Support We are able to offer one to one support for siblings, aged five and above, who might need help in dealing with difficult emotions and feelings. If you would like to find out more about this service please contact our Holistic Care Centre or telephone 020 8505 9944. Support for parents Coffee Morning 10am–12pm on the second Thursday of every monthCome along and chat to other parents, share experiences with others who might be facing similar challenges. It's an informal group and all parents are very welcome. Please contact the Family and Community Support team for more information. Law Clinic - We have recently joined Voices for Families, a partnership between LawWorks and Together for Short Lives. Appointments can be booked for families to meet with volunteer lawyers who can help them with queries such as care packages, housing issues, personal budgets and transition. If you would like to arrange an appointment please contact the Family and Community Support team. Family summer daysPlease come along to our summer family days. Families can get together and enjoy the grounds. Please contact the Family and Community Support team if you'd like to come along. Saturday 4 August 2018Sunday 19 August 2018 Between 11am-3pm Open Grounds Days These open grounds days are for families who access Haven House services to enjoy our wonderful gardens and play and sensory areas. Why not bring your own refreshments and get together to relax and spend time in the grounds with your family. Sunday 24 June 2018 (Dads are welcome to join the World Cup viewing in our Holistic Care Centre)Friday 20 July 2018 (from 3pm to 7pm)Wednesday 25 July 2018Monday 13 August 2018Friday 24 August 2018Saturday 1 September 2018 Please contact the Family Support Team if you'd like to come along. Dad's Group Join our Dad's Group and share your experiences and challenges as well as have fun. Our next meeting is on 24 June at 12:30 and we have organised a screening of the England World Cup game at 1pm in the training room, Holistic Care Centre. Please join us and find out a little bit more about the group and meet other dads - lunch will be provided. Please contact family support if you are interested in attending. Parent Forum Parent forum provides an opportunity for you to meet directly with Haven House Trustees to share feedback about your experiences and to help shape service delivery. Our trustees David and Inge are available for face to face feedback throughout the year. If you would like to attend please contact Family Support or telephone 020 8506 5523. You can also write to us at Parent Forum, Haven House Children's Hospice, The White House, High Road, Woodford Green, Essex IG8 9LB, or alternatively please complete this feedback form here. CounsellingWe offer a Counselling service to parents, carers and extended families. Counselling aims to help you deal with and overcome issues that are causing emotional pain or making you feel uncomfortable. It can provide a safe, regular space for you to talk and explore difficult feelings. This can either be on a one to one basis or if preferred as a couple. For further details please contact Bev Shearer or telephone 020 8505 9944. Complementary TherapyWe offer Reflexology, Rejuvanesence and Reiki performed by experienced complementary therapists. These treatments are available weekly and are free of charge to parents. For more information or to book a session please contact Lisa Jones or telephone 020 8505 9944. Music Therapy Family Group Music Therapy takes place monthly on a Saturday between 11am-12 noon and open to all ages. 16 June 201814 July 2018 Places are limited so please book in advance. Contact Helen Mottram or telephone 020 8506 3765. Wriggles and Rhymes 10.30-11.30am on Monday morningsMusic therapy group for children aged 0 - 2 year plus parent/carers followed by Stay and Play 11:30am–12:30pm. Please book in advance. Please contact Helen Mottram or telephone 020 8506 3765. YogaFamily group Yoga takes place monthly and sessions for under 5s start at 11am with over 5s session starting at 12 noon. Places are limited so please book in advance. Please contact Lisa Jones or telephone 020 8505 9944. Weekly Group Yoga takes place on Friday afternoons with sessions starting at 4pm and 5pm respectively. If you would like to book a place on a course. Please contact Lisa Jones or telephone 020 8505 9944. Family Support WorkerOur family support worker offers a wide range of support including advice and information on social issues, liaising with professionals from other agencies, completing grant applications and support with benefits. Please contact Becki Josiah or telephone 020 8506 5525. Information for parents of Waltham Forest children - we are aware that the Home to School Transport arrangements have recently changed in Waltham Forest. We know that this is a major issue for families and many of you have had your provision changed for September. You are entitled to ask for a review of the decision if you are not happy with it. Please contact, Becki Josiah, our Family Support Worker who is available to help you with this if you need it or telephone 07921 453 247. You can also get help and information from The Waltham Forest Parent’s Forum. Free photo-shoot - The Butterfly Wishes Network provide free photo-shoots for parents of life limited children. They'd like to work with Haven House families so let Becki Josiah know or register your interest here. Family offersFor further support, guidance and advice please take a look at these not-for-profit and charitable organisations who can provide support to parents of children with life-limiting conditions. For any other information please telephone 020 8506 5525. NFL London Games offerTake a look at this fantastic offer to our families from our supporters at Epic Foundation. On 21st or 28th October 2018 there is an opportunity to be an honorary Jacksonville Jaguars team captain and accompany players onto the field at Wembley for the coin toss. This offer includes exclusive field access passes for two people (young person and accompanying adult) to watch the warm up and enjoy the match from box seats. If you are interested please contact Natalie Chevin or telephone 020 8506 3631 by 30 June to be picked at random. Tryb4uFly Tryb4uFly is an organisation offering advice and equipment rental for air travel with a disability. You can hire supportive seating and harnesses. They have a useful information leaflet with tips for travel. You can book an OT assessment in their mock-up airplane cabin in Carshalton. Please contact The Queen Elizabeth Foundation on 020 8770 1151 for more information. Ideas from your childWe are working with Children's Hospices Across London to recruit more nurses to Haven House and are keen to get ideas from young people. We're interested in hearing from young people who access our services. Please take a look at the this document (330kb) with your child and encourage them to take part. For more information contact Katie Stevens. Thank you. Haven House Children’s Hospice gives the highest priority to safeguarding the children and young people who use our services or visit our premises. If you have any safeguarding concerns our Designated Safeguarding Leads can be contacted directly on 020 8506 5524 or Debbie Dawes. For any other information please contact or telephone 020 8506 5523.