Parent information Welcome to our parent page. Here you will find information about: 1. Family Support2. Support for Young Adults, Siblings and Young Children 3. Support for the whole family4. Useful Information The following events and activities are available to all families who are supported by the hospice. Family Support 1. Support for Parents Coffee Morning - 10am–12pm on the second Thursday of every month.Come along and chat to other parents. An informal group and all parents are very welcome. Please contact the Community and Wellbeing team or call 020 3096 5815 for more information. Family Christmas Brunch Save the date - Saturday 7 December We are at a new venue this year. 10am-1pm All Saints Church Woodford GreenBrunch provided, face painting and craft activities If you are interested in more information, please contact the Community and Wellbeing team. Expert Parent Programme This workshop is about complex health needs and transition to adulthood and is aimed at the parents and adult family members of children or young people aged 14+. Date: Monday 18 November 2019 Time: Arrivals from 9:30am for a 10am start; session finishes at 2:30pm with tea, coffee and lunch provided Where: Haven House Children's Hospice, Woodford Green If you would like to find out more or book a place, please contact the facilitator: Anna Gill on 07732 176088 Law Clinic - A partnership between LawWorks and Together for Short Lives.Would you like to meet with volunteer lawyers who can help you with care packages, housing issues, personal budgets and more. If you would like more information please contact the Community and Wellbeing team or call 020 3096 5815. Dads' Group Join us at our Dads' Group where you will be able to share some of your own experiences and challenges as well as have fun. Our dads have recently raised money for Haven House by doing The Thames Walk, well done to our Dads. If you are interested in more information, please contact the Community and Wellbeing team or call 020 3096 5815. Complementary TherapiesOur complementary therapy service is led by volunteers and is offered to parents of children who are receiving care at Haven House. We are in the process of updating our therapists and are currently offering Rejuvanessence. For more information or to book a session please contact our Holistic Care Centre or telephone 020 8505 9944. 2. Support for Young Adults, Siblings & Young Children Transitional Care Get support for young people to develop in life as they move from a children’s hospice to adult services. We can help to build bridges between children and adult services. Michelle Higgins, Specialist Outreach Nurse is our Transitional Care Lead so if you have any queries please contact us or call 020 3096 5815. Young Adult Support Group4 - 7pm on the third Wednesday of every month at St Francis HospiceFor young adults age 16 or over with life-limiting illnesses. Haven House is working in partnership with Saint Francis Hospice and The J’s Hospice to bring young adults together. Enjoy a take-away and take part in Scalextrics, Xbox, Arts & Crafts and complementary therapies. Parents and carers can either stay or leave their children. During the sessions staff are on hand to ensure everyone receives the support they need. For more information please contact our Community and Wellbeing Team or call 020 3096 5815. Teenage Cancer Group 5.30 - 8pm on the third Thursday of every month.The group provides a chance to get together with other teens living with a cancer diagnosis and offers support for those young people and their families. There’s food, fun, games as well as music so if you’d like to join in please contact our Community and Wellbeing Team or telephone 020 3096 5815. Buddies (siblings age 5 and over) Brothers and sisters of children who access hospice services have an opportunity to get together; have fun and express their feelings. For more information please contact a member of the Community and Wellbeing Team or telephone them on 020 3096 5815. Sibling Support We are able to offer one to one support for siblings, aged five and above, who might need help in dealing with difficult emotions and feelings. If you would like to find out more about this service please contact our Holistic Care Centre or telephone 020 3096 5815. Saturday Music Therapy GroupFamily Group Music Therapy takes place monthly on the third Saturday of every month between 11am-12 noon and open to all ages. Places are limited so please book in advance. Contact the Community and Wellbeing Team or telephone 020 3096 5815. Wriggles and Rhymes 10.30-11.30am on Monday morningsMusic therapy group for children pre-school age plus parent/carers followed by Stay and Play 11:30am–12:00pm. Please book in advance. Please contact the Community and Wellbeing team or telephone 020 3096 5815. YogaFamily group Yoga takes place monthly and sessions for under 5s start at 11am with over 5s session starting at 12 noon. Places are limited so please book in advance. Please contact Lisa Jones or telephone 020 8505 9944. Weekly Group Yoga takes place on Friday afternoons with sessions starting at 4pm and 5pm respectively. If you would like to book a place on a course. Please contact our Holistic Care Centre or telephone 020 8505 9944. 3. Support for the Whole Family CounsellingWe offer a Counselling service to parents, carers and extended families. Counselling helps you deal with issues that are causing emotional pain or making you feel uncomfortable. Our counsellor provides a safe space for you to talk and explore difficult feelings. This can either be on a one to one basis or if preferred as a couple. For further details please contact our Community and Wellbeing team or telephone 020 3096 5815. Family Support WorkerOur family support worker offers support including advice and information on social issues, liaising with professionals from other agencies, completing grant applications and support with benefits. Information for parents of Waltham Forest children - we are aware that the Home to School Transport arrangements have recently changed in Waltham Forest. You are entitled to ask for a review of the decision if you are not happy with it. Please contact our Community and Wellbeing team or telephone 020 3096 5815. You can also get help and information from The Waltham Forest Parent’s Forum. 4. Useful Information Family Forum Meet with Haven House Trustees David and Inge to share feedback about your experiences and to help shape service delivery. You can also write to us at Family Forum, Haven House Children's Hospice, The White House, High Road, Woodford Green, Essex IG8 9LB, or alternatively please complete this feedback form here. Free photo-shootThe Butterfly Wishes Network provide free photo-shoots for parents of life limited children. They'd like to work with Haven House families so let Becki Josiah know or register your interest here. Family offersFor further support, guidance and advice please take a look at these not-for-profit and charitable organisations who can provide support to parents of children with life-limiting conditions. For any other information please telephone 020 8506 5525. Tryb4uFly Tryb4uFly is an organisation offering advice and equipment rental for air travel with a disability. You can hire supportive seating and harnesses. They have a useful information leaflet with tips for travel. You can book an OT assessment in their mock-up airplane cabin in Carshalton. Please contact The Queen Elizabeth Foundation on 020 8770 1151 for more information. EDF Energy Trust The Trust awards grants can help to: •To clear domestic gas and electricity debts to EDF Energy and other suppliers•To purchase essential energy efficient white goods and cookers (known as Further Assistance Payments (FAP))•For Bankruptcy and Debt Relief Order fees.You must be an EDF customer but you may owe money to other suppliers.See website for details of eligibility and how to apply for a grant. Planning a visit to a local attraction or further afield? Worried that you won’t be able to find a place to change your child? Visit the link to search for all Changing Place toilets in the UK. http://www.uktoiletmap.org/ Haven House Children’s Hospice gives the highest priority to safeguarding the children and young people who use our services or visit our premises. If you have any safeguarding concerns please contact our designated Safeguarding Lead Adila Ahmed on 020 3096 5816 or our Deputy Safeguarding lead Katie Lewis on 020 8506 5521. For any other information please telephone 020 8505 9944 or email on our secure email [email protected].