For further support, guidance and advice please take a look at these not-for-profit and charitable organisations who can provide support to parents of children with life-limiting conditions.

Barnardo's Indigo project

The Carers Trust

Contact a Family

Counselling Directory

The Dream Factory


Great Ormond Street Hospital for Children


Rainbow Trust

Rosie Crane Trust


Together for Short Lives

Waltham Forest Parent's Forum

Young Epilepsy