For further support, guidance and advice please take a look at these not-for-profit and charitable organisations who can provide support to parents of children with life-limiting conditions.

Baby Loss Awareness

Barnardo's Indigo project

The Carers TrustChildren of Jannah

Contact a Family

Counselling Directory

The Dream Factory


Great Ormond Street Hospital for Children


Merlins Magic Wand

Rainbow Trust

Rosie Crane Trust

The S.A.M Fund


Together for Short Lives

Waltham Forest Parent's Forum

Young Epilepsy